Embracing T1D, Sort of

Type 1 Diabetes sucks. Period. It is exhausting, nerve wracking, anger-inducing, humbling, and unnecessary. It sends me on a daily wild goose chase, trying to catch the illusive ‘good’ blood glucose level of my daughter, Charlotte. It forces me to sleuth out the often random causes of her high or low sugars. And obliges me to wake her up at 2:00 a.m. to prick her finger. I rarely get back to sleep, my mind awhirl with T1D. This little devil never leaves me.

But I embrace it; there is no other choice. And so, oddly, I am thankful.

Thankful that Charlo has the benefit of improved T1D management that rests on the care of so many people with diabetes before her. Thankful for technological advances like her insulin pen that uses a tiny needle to administer the crystalline drops of life rather than an ominous syringe. Thankful for the insulin that has stabilized her and enables her to be a happy, confident, zany kid. Thankful that we caught the disease before it damaged or killed Charlotte. And thankful that her spirit is undaunted.

We are fortunate in all of this to have terrific endocrinologists and T1D educators on our side; people with whom we connect on a daily basis to discuss Charlo’s numbers and walk us through the heady process of insulin adjustment. Our health insurance is a boon as the dollars of disease are dizzying. I can’t imagine having to decide whether to forgo food or insulin, a cruelly ironic predicament. And I have met incredibly strong women, fellow T1D mothers, who have generously embraced me though their lives are full and chaotic as well.

There are days when T1D overwhelms me. But then I look at Charlotte, only nine and a half, carrying this disease with grace, courage, and spunk. And I am thankful.

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One comment on “Embracing T1D, Sort of

  1. MamaZuzi says:

    I will say I have thought about what if this had happened to one of my kids. Adi, in her own fashion I believe would have figured out a way to deal. Indy, on the other hand, would not deal well at all! No way, no how. It would be ugly and dangerous and difficult regularly and I honestly don’t know that he wouldn’t have to end up really really really sick before he figured out it was in his best interest to try to cope. I am thankful for you that you have a girl who can handle this and that has the advancements that have already happened… I hope she (and you) get even more support and an easier way sooner than later.

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